Report transcript in: Value of copro - Jak - shares what difference copro has made in her life.

Please Report the Errrors?

so,

um hi, Jack.

Just gonna invite you to introduce yourself briefly and

then talk to me about your experience of coproduction.

Thank you.

Um, I became disabled seven years ago.

Um, and I had a background of working in health and social care and education.

Um,

I suddenly became the person that needs to be cared for,

as opposed to delivering care.

Um, from there,

um, I've worked closely with Stockton Borough Council. There have been the person

been, uh, given me a personal budget

and things. Um, So I started off with care agency, then,

uh, migrated to a managed account,

uh, on personal budget and then migrated to have,

um, me doing it myself. Self directed support.

And

these projects kept emerging. The Stockton Borough Council.

And

there were opportunities to sit on social work panels,

interviewing social workers for jobs.

And because of my background, I I found

it.

I approached the manager and I said, Yes, I'd like to do this.

So I started sitting on interview panels with social workers,

and I really enjoyed it.

Um, we got to ask questions.

We got to sit and do some of the pre planning with the panel and and

I felt really included as a service user and as a person who lived experience,

really, And

I was quite chuffed that my co

bothered so much that,

um, their citizens could inform kind of, you know, certain questions. So, uh,

made some very good questions, so

and got to ask those and we got involved with the, um, after processes as well.

So after the interview had finished, we got to sit with the panel and

we couldn't automatically choose the person that got the job.

But we could give our opinions across, and

I felt that my opinion was valued

and because that was my first experiences around co production,

I had the enjoyment of it.

But I felt that I was listening to and it was active listening.

We weren't just heard.

We were able to, you know,

it informed their future practise. So every time I went and I

did kind of four or five days of this, you know,

for different teams in the end and got a bit of a taste for it,

Um, they try to use different service users and not the same ones all the time,

so there's a great rotation.

Um,

but I'd do it again if they asked me.

But then I've I've I've kind of gone on to do other elements of co production as well,

and

I've been asked to do little tasks of Do I not

want to contribute to this blog or contribute to that blog?

And

so I think that my council do it very well.

Um, I think that they demonstrate a real care about

what we would like to see for the picture of, you know, the future of social care.

Really.

And I think that there's the value there

and because the accessibility side of things is sorted, we can, uh,

participate online.

We can participate on telephone,

we can participate in person.

And I know some service users even the offer of making a sharp video

with their question in it and posting that, you know,

um, I found it quite surreal that I was sat in a room full of PayPal,

and I'm the only person facing the candidate that was on a computer screen.

But for me,

the accessibility being met

and the fact that they widen participation that way was,

you know, really I I think they should be commended, really? For that. And it

it made me just feel

like I could do it. I started to have a little bit of self belief.

I spent seven years,

um,

trying to find my self belief and trying to find the word

again.

Um, I'd woken up on the stroke where I had become very ill

and then developed another neurological condition on top.

And for me,

I had to find Jack again.

And I generally would say, Cat, that

coproduction

has helped me find me again.

And that's because it's involved me.

And there's been some diversity towards projects that we could get involved in,

and they have so many things ongoing.

Um,

I felt that the processes of planning core production,

um,

have been brilliant.

Um,

this year I've done something,

uh, terribly exciting.

I have gone one step further

and initiated by Stockton

Council.

Um,

I become involved in delivering a workshop

the Spring Seminar

of Air,

which to me, I was like, Oh, we've gone from doing interviews to the top of the tree.

But

last year, as well as doing the interviews,

I was involved in a working group for, uh, about four months. We met once a week,

and it was a panel of Stockton Borough Council

workforce with the assistant director

to adult social care.

And we were planning

on delivering a week of training to social workers

that put me in the driving seat to deliver a day,

but not only deliver, but also look at setting some of the key themes for the week.

I got to put videos together and put some of my

training or some of my background essentially before I got ill

into

delivering a week that would help social workers celebrate their learning.

Um, and we're also

I got to talk about my life and my life story,

Um, which is

a bit complicated,

but,

um, I've had quite a diverse path and pathway

to get to where I am now

and

because it gave me the opportunity to do that.

also inspired me to have some self belief that

my background has made me

I have something to offer

because it was this coproduction kind of opportunity to

really teach people I look up to.

You know, social workers are more trained than I and

more you know, But for me to have something valuable to say

was the most rewarding thing for me.

So it was there for a

piece of work. But it was about

the good that it would do

just by me talking and setting themes. And

I enjoyed the working group. It was marvellous.

But because of my involvement in this, you know, lead to a festival of learning.

This week it was called

and because of my involvement on that, I got to

kind of

move on to this a a

piece of work that we've just delivered at the spring seminar.

And that was the same.

It was taking part in a working group.

But this time the working group wasn't stuck in Borough Council. So

it was all the councils in the region.

to me, it was a step up, and I was like, Oh,

I feel really special and out of place at this place.

But

they were all for it.

And,

you know, we have a co-production ladder

that's always talked about and the levels of interaction really of coproduction.

I'd say when I did the interview, I was kind of on run seven and run six and things. And

then when I'd done the working group, the Festival of Learning

were on kind of five and four tiny glimmers of three.

Maybe, you know, a little snippet of number one.

I feel genuinely that the work I've just done with

North Beast over the last couple of months,

culminating in appearing at the spring seminar to deliver a workshop.

I was in the driving seat

and I managed to convince a das northeast it was very good,

and it was a good idea to put a service to use it in the driving seat,

and

it wasn't a hard sell.

I feel that they were very, very pro

supporting a service user to achieve that,

and they helped me achieve my full potential through doing that.

Um, so

we did a short video,

Um, and it was all about the benefits that putting a service user

into the driving seat or inviting them into it

into the driving seat would not only benefit them as

an organisation in terms of their growth in the council,

and it would help to,

um, bolster services and help to revolve services really,

to the social care future that we're all striving for.

Um,

I felt that it grew me.

That was the the bit that I didn't expect.

I didn't expect that

when I had completed doing all a working group

and planning for this session and even producing an animation

and a video for the session.

I didn't believe for one second that I would come out of it feeling a

little bit more complete than I did before I went in.

And what has it done for me?

Well,

co producing at that top tier that top three runs for

a couple of months within this air das project in,

In, In, In Delivering and going to deliver some workshops after that or going to

back to

a DA

Northeast and some of the care we want Network And,

um,

the lived experience network with air.

I've been going kind of once every couple of weeks to all these meetings and

to redelivering that presentation that I've had,

um, we use something quite innovative and

we come up with the idea of using QR code.

So not only do people get the benefit of

having the workshop delivered to them at the spring conference

um that they got to take away

a little

with a QR code on that. So I've kind of put a presentation together with it.

That's Northeast. And,

um,

I felt that they really trusted me in the floor cord idea. Stick a floor cord to a car,

and what that will allow people to do is scan

it with their mobile phone app and pull up my story

in printed farm.

And,

um,

the benefits that co production has brought to me and the benefits

of being in the driving seat not only for my own care,

but being in the driving seat for co production

as well

and and and putting a service user really at the top, sometimes to be a driver.

Um,

there's so many co-production little things that

I've been involved in in my pathway.

But for me,

I have grown most where I've been able to operate at the top three tiers,

being able to actually say, You know what?

I've got the lived experience and I have the expertise to actually go back because,

you know, I think that when we get care

and I think when we get,

you know,

acquired disability like I have and acquired illnesses

after been so fiercely independent in my life.

I feel that we get labels

and nobody, you know, and we we're dealt with with a little bit of unconscious bias,

I think.

And

I I don't think it's intentional half the time. But

before I got ill or disabled, I used to introduce myself as Jack. I am Jack. I like art.

I like cooking.

I work in social care. I work in education.

I love developing and delivering resources and training.

Now,

um,

you get into the habit of saying,

Have a care package,

have piers

and these become the predominant features of

kind of labels that you think are the most

important to mention to people at that time.

And I think it's just

adaptation.

We switch ourselves and revert ourselves to a new normal.

And I think what co production has done to me is flip that back

co-production at that top kind of level and having a

greater level of autonomy.

So it does

not.

I mean, Stockton

Council ought to be commended.

Fall

rebuilding and help me find me.

You know, I've got a neurological condition that affects my

central nervous system almost and and,

um,

the S,

as they call it,

Um and they've allowed that to kind of unfurl in me, so

I won't make my elements of disability disappear. They all are permanent,

but it's how I

deal with my disability.

I like to see it as that. I've got different ability now, and Co-production

has helped build a new,

better Jack

and I've learned to have so much resilience and tenacity and things. And

I've always grown up with that dog get me wrong but co production

and being able to be me again beyond my disability and beyond my care, and

to be engaged on a project for

what you can bring to it

the values that you can bring,

the behaviours that you can exhibit

all of your past, background and training, where your interests are,

where your passion is

because that's harnessed through co production. And I feel that

that has been something that's been promoted by Stockton

Council. And,

um,

you know, I feel like I want to go back to work now

and

secretly behind the scenes. Uh, I will let you know, and I will let whoever is

gonna receive this information, and I will let you Probably

So,

um,

I'm actually wanting to

go back out and do some consulting, say, as a person with lived experience,

I am setting up a website

and I've just newly brave Twitter.

I'm kind of new to Twitter,

and I only went back onto a set up account in January and then didn't do it,

and I'm a confidence dropped out.

But then I did some

production,

and now I'm actually a fully fledged Twitter member,

and I'm tweeting regularly, and I like to tweet about when I've had

interactions with Corp production,

and I like to share information

and help other people now.

And I really like to sell Corp production because it's helped me with my

emotional growth. It's helped me with, um, my

day to day life with my

tasks of daily living so normal care tasks, because I thought that my

I've had a routine now of getting

get ready,

get washed, get dressed, get breakfasted.

Let's do that earlier and be more motivated with that

because I have a work day ahead,

and my work day may only have been

two hours of coproduction meetings

but that for me has

I've begun. So you know what I say.

You know what?

I sat through all of that interaction, cat.

I sat through all of those tasks, and I achieved that.

I actually managed to say to the people on the thing,

Do you know what it's three o'clock kind of need to bob off and have, uh, nine tablets,

two syringes of medication and sick and coffee now

and leave back out to take me to the load.

But I've become that confident and and And that adapted co production.

Now I just say,

Right, I'm back in 10 minutes,

and I don't tell them where I'm going.

They know,

or they don't need to know.

So I've become

more confidence in saying, Look, this is me.

I'm not gonna tell you what's wrong with me.

I'm not gonna tell you the ins and outs of my heart with my illness,

so if I'm allowed to be like that,

But

I just want to people to see the ability

and the education and the expertise that I had before I acquired disability,

um,

be disabled matters in some cases because I'm able to let people know that

if they're struggling with aspects of rehabilitation

or struggling with aspects of re,

that

I can kind of mentor

in that area. And I think that's so important to not forget that

I've overcome

challenges

and I've overcome barriers.

And

one thing about co production I can tell you is

the whole core production world is evolving now

have so much growth

and and and and because we're working and and and

people like

actually

you know, there's so many of organisations, you know who you are involved with,

um and and and

have changed.

Um, at the end of the day,

you know you are working towards helping people like me have relevant

practise and work experience and engagements that are worthwhile.

They're engaging

and they are bringing benefit to our lives. And

that's what I say for me,

that core production has given me so much benefit.

I now feel that I've been able to sit through that

to participate

and my participation has been widened.

So I had more opportunities now because the

world of co production is evolving rapidly.

Um, that I feel I can go and get a job

I can do that for a day. Right, Jack?

I now tell myself I am more than capable of having a part time job

from home.

I've got my peers for support,

and

I wouldn't have thought that was possible. Three years ago

Mm.

I thought it was amazing that the counsellor had put me forward for an award for being

a you know, an

on independent employer.

And I thought that was a big thing at the time. But no, actually,

I think co production

and I think the forward thinking focus of people like Stratton Borough Council

and a

small things

have been

the integral cog

into me Now, being in a position

to feel that I now have employability skills again.

What?

What do you think it is that, um, a das

Northeastern Stock and

Council have have done

that

has

enabled that or allowed that What? What? What's contributed

to to co-production working so well for you and I and I say that

and not look it not necessarily any

tangible things.

It could be, you know,

just the fact that they've given you space or the trust

or the relationships or those kinds of things as well.

But What do you think? Has really helped.

First and foremost, I think that

I saw a list of

ways not to do it and reasons not to do it. And they were kind of immersed in

a lack of self belief

and self confidence.

And

when you are disabled at home, you

and you have got all you've got to suddenly get to side one side

of your

body.

You

help

them,

you need help getting new food you need. You can't make a hot drink yourself.

You forget to take your tablets and your medication. So

self doubt grows like a snowball rolling down a hill

when you have. You know, when I I have had acquired disability.

So you've got to unlearn those behaviours

and what the the key is

was

I went to them with a list of barriers as to why I couldn't do it.

They remove those barriers.

So I think

the key that Stockton Borough Council have had and

Northeast have had

are

air building self belief and confidence

and naturally knowing that they have to do that or they

should offer some kind of emotional support around resilience for that.

But then they've also got to address barriers,

and they very successfully turned barriers into herds farming.

I couldn't get out of the house when I

first started co production because we were mid pandemic and

I was classified as extreme, clinically, extremely vulnerable to covid.

So I was isolating even from my family.

Um,

they just made the impossible possible,

right, Jack, you don't have to come in.

Use the Internet if you can't use the Internet

and you don't want it, you know, Internet need.

Should we do it off the phone?

If you can't do that, would you like to write things down and send them in?

So it was all of these possible accessibility routes that they mapped out and

they had these

preplanned and Prethought.

Um, so I think they were quite organised Well, for coal production,

Um, and it was

always

just do as much as you want

or try a little bit more, try a little bit more,

and I become more confident,

you know, by

you know, I used to do interviews for the

social worker interviews with I mentioned earlier on,

and I become that confident. I was actually

not taking part in the feedback. Afterwards, I developed my own form.

I developed my own

box on my

own, and

then it gives them a resource back

to use with other

people with lived experience.

I've learned to.

So those are the key drivers.

For me, those were the things that I feel that they have done well,

what I found it when I've been engaging

what's also been

an an important thing that they have done well is listening to the feedback

taking on board the feedback that I have been able to give them, as

you know,

down to the language that we use when we represent ourselves the workshops.

Um,

so for me,

I feel like I've had this immersive journey

that started like a little small pot from

has rolled down it, and I think it's only got better farming.

And what we've got

at the bottom when this big snowball has turned into something quite massive

I myself have been able to roll ahead and put it on top of this snoble,

and it's become a person,

and that person is me,

and it might be

quite

hard

use,

but

for me,

it has had so much personal growth and so much

difference within my self belief and hope for my future,

I thought all hope was lost.

If you'd have asked me three years ago, I'd just written myself off.

I would have done.

But now Mum's happy.

Yeah.

You know, I'm putting my CV to Kevin.

I'm now

a member of the Institute for Health and Social Care Management.

Um, tomorrow, I'm gonna go and sit on with a working group for, uh, social innovators

with them.

I've been getting myself on E courses and doing a lot more training.

So, really,

it's been a precursor for my reentry

into the world of employment

and into the world of education again.

I found Megan through co-production.

So for that, I can't.

Is there anything else you want to add, Jack, before I stop

the recording?

Um, I can't think of anything. Cash. Um, Can't think of anything at all.

I think I've rambled on if you could make some sense of all of that nonsense.

Uh, but for me,

because of the

journey that I've had,

I'll always have a passion for it. And I always want to do it to participate.

I just started. I got confidence to join.

Um, the Coproduction Collective University College, London.

and I sat in on something with them.

I am doing a piece of work with them.

Um, so my first bit of earning

Yeah, seven years.

So, you know, it's obviously all the work I've been doing over the last three years.

The co production has been unpaired.

So now it's quite a novel thing that Oh, hang on a minute.

I really And and you know, that is something I'm trying to tackle and change now

is getting people to think about co production in terms of, Well,

hang on, it just have this huge benefit for us.

It does have this huge benefit for you,

but is there something more that we could be doing to

make it feel like the world of work as well?

And I know

budgets have their constraints.

But is there something that people can do to maybe contribute

to that person's living situation as well? And

you know it's not. Not everybody will want to be paid.

Not everybody wants to take it as a job. But

do you know what I feel like coproduction has been this huge,

great big catapult human catapult, and it's projected to be back into

being able to have the self belief that I can work again.

Hm,

That's it.

I'm just banging on

cash.

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Author

cat@curatorsof…

Post date

12/06/2022