Report transcript in: Mental Health Research Conference

Please Report the Errrors?

buttons.

there does it come up on your thing? The record?

Yes. And I'll just say, OK, then.

OK,

lovely.

Um,

so hi. Um, I'm Emma.

I'm from, um, Birmingham University From the, um

uh, public engagement, um, and involvement. And I'm here with, um Shahina Shahina.

Would you like to just introduce yourself?

I'm shahina. I'm a facilitator for the

Arabian,

um,

research that's been happening for Warwick University, uh,

championed by, um,

Dominico and his team.

So I

for an

interview

with very

much to talk about that.

appreciate your time. Shahina. Um

yeah. So, um

so, yes. So,

um, really,

this is just an opportunity to kind of have a bit of

reflection on the event cos we were both at the event,

um,

in July, and, um,

it was it was a lovely hot day. Then it wasn't. It was we were out on the terrace.

It was It was It was very nice, but

it was a really interesting event, and we we were chatting,

um, and so it was really kind of just an opportunity to get your thoughts, uh,

about what are the key things that that you kind

of remember from the event that you felt were,

were you that you liked?

Um, can you perhaps kind of give us AAA bit of, um,

information about that? About what was it that you took,

um, from that event?

OK, so for the audience, because we know what we're talking about.

I just want to say that,

um I've been involved with

AAA.

Um,

Ariadne.

Sorry, Ariadne.

I can't say that word properly. I know. Me neither.

Yeah, so,

uh,

with throughout the last two,

research programmes.

So they do a co production with, um,

you know, with

the professional

and, um, with people with lived experience as well as facilitators.

So I was one of the facilitator.

I'd like to think so.

Um, the event was about bringing all the research,

all the things that we talked about in in the meetings

and to, um uh, you know,

bring them out. So what was what was talked about what was the outcome

and to, uh, pull together what our thoughts were,

and we had slides, um, slides to

represent what each person talked about the professionals that were behind,

um,

with the research team and obviously new ideas

of how to bring the community together.

So,

um, the research was about,

um, how to ensure the services culturally competent for ethnic minorities.

Part of that was a great deal

and to improve their mental health services. And that included talking about, um,

the service providers from mental health Team and obviously

the lived experience people that came to the meeting,

Um, they expressed

how they would like to see changes so that

that event was to bring all that together and then

all of us to see what were the outcomes. And it wasn't just a local London event.

It was, um, a national event.

So, um, it brought, um, people from all areas of, um, England

and it

It was an opportunity to meet everyone face to face because we were talking,

um, on the zoom meetings.

And it was really lovely to see everyone that day as well.

Right. So So what were the things that you,

um, thank you for kind of giving AAA bit of an overview around it?

What were what were the things that you felt,

um,

really kind of hit home for you? About the the event. Some of the some of them.

Some of the feedback. What were the things that that resonated for you?

For me?

Um, getting involved in this kind of work means that I want to bring changes and

to see

the,

um I just declined The,

um, for me, uh,

to to see changes is what is my interest? My principle is coming into this meeting and

to, um, voice

voice for people that may not be able to.

For example, mental health is a deep, deep issue. It's stigmatising.

People

want to have change, but lo, lots of people don't have the opportunity to come to,

you know, this kind of meeting and express their views And what?

One of the things that I felt humbled is I

would like to to not only express it but to have

an event to try and bring things together and move

it forward and try to try and deliver as well,

so manifesting what we discussed is very important part of the event.

And, um, to hear it

as a group

in one room

was very important.

And the voices that came together,

um, they they also expressed the kind of future strategies.

Um the future things that we need to do,

acknowledging the kind of thing that we need to do

and people sharing experiences as well in that event.

Um, it was a lovely event. It was tailored to,

obviously, uh, you know, we talk about these things.

One of my concerns, um was we're always talking.

I said to Dominico that we're always talking

about how do we ensure that this actually transpires

into the actual strategies that you are discussing?

So he said, um uh, in the meeting that we'll try and get more funding to try and

over, you know, overcome those issues and see how we can go out forward.

So he did secure funding

And that me, um those meetings in the last few, um,

meetings that we did was about how we can help them, um, deliver.

So in the meeting, in the event we had, um, talk people talking about,

for example, one of the ladies, Um, I don't I can't remember her name.

She was saying, um, we should have an open

room where people can come into and just

just enter and spend the day there or, um, just walk in and feel free to talk to people.

And,

um, there'll be a bed there, they can talk about their issues.

It was just a free space,

a communal space that people can't come with if

they felt that they had nowhere to turn to.

So, you know, currently, um, you'd have to be sectioned,

or you'd have to go through the process

with the GP

and you'd have to, um, get a referral. And it all takes time. It's time consuming.

It might not always, um,

you know, cater for what you might need to address as a mental health service user.

But that is an open space. It's a hub

which I've been talking about all this time,

and I was elated to hear that.

And

I actually

commend what she's saying because we do need hubs because there's too many

rigid,

um, difficult processes for people to get what they need.

And that event showed that we can come together.

We can talk about it, and we can deliver because this this hub is being talked about.

But it's also been delivered,

and that gives gives me reassurance that we're not just talking about it.

That event gave me in a better insight into what should be done and what is being done

because I hadn't met that lady before,

and that was an opportunity in that event to meet and hear it from her.

And that was that was very important part of the event,

because talking just face to face in the zoom doesn't really do it all.

Yes, we can share our ideas,

but how do we bring it about?

And it was really nice to bring it in the room and have question time,

um, to be able to ask directly the questions to these people.

Absolutely. So, yes, I think, um,

was that the the Tower Hamlets, um, proposal with the that they had a similar, um

uh, community in in Italy,

I think where the the services were brought to

the community and if there was a community space,

um,

which was very much which was very interesting.

And and and like you say, I think, um, when we had a conversation,

you were saying a lot of the research,

you know, there isn't, like, a loop a feedback loop. Um, around it.

You kind of like you do something, and then,

um and then nothing's heard of again. But,

um,

what I hear you saying is, is that it was it was, um,

really helpful to see that actually, there was actions from that research,

like some of some of the things that were identified.

Um,

all around having policy

policy changes came into the room. We were able to listen to them directly.

We were able to absorb what they were thinking.

They

use the slide shows to explain the kind of strategies they want.

So they talked about,

um, obviously, uh,

talking to lived experienced people.

But also, um, we had the opportunity to say what we want,

which was relatable to ethnic minorities.

Uh,

biggest part of this was about how to strategize so that

it meets the community needs as a whole for mental health.

Um, this is just not

We can talk about the, um, delivery for everyone,

but there's also niche services that need to be met.

That was part of what I came for.

Because I, I find that,

um,

understanding the values and ethnic needs the minority needs

makes the service a much better relatable and effective,

um, service.

And, um, there's so many loopholes because people are stigmatised.

A lot of people deny mental health.

They don't understand the concept of what mental health is.

And a lot of people, um,

don't want to admit that there's mental

health or they're suffering from mental health because

they're scared of what people will think about them

until they actually have a a lapse. And then

obviously you can't hide that anymore.

And

one of the things is

we talked about policy changes as well.

About alternative.

I. I discussed that in the meeting.

Um, medicine is not always the answer.

The pharmaceutical companies are making billions and

trillions out of people like the,

uh uh, the live experience, Um,

people that came into the meeting

and we represent that

this is not the ideal solution.

And when the lady said about the to

hand its hub, that will come in to effect.

And people would have the opportunity to just walk in without

having to go through this process through the GPS or whatever,

because people don't have the confidence to talk.

And if you're just going in there and no one's going

to pressurise you and you just can be in a space and

just feel free to walk in. That would encourage people

because, uh,

there's lots of people that will have language

barriers that won't want to talk about it or

be scared that they

what their family might say.

We we know, even from royal families,

mental health to talk about. That is a great thing.

Look what happened to Megan Markle. Um, uh,

Kate, um, as well, because they don't really like to talk about mental health,

do they?

Um,

it it's in every culture.

Yeah, abs. Absolutely.

Um,

thank you for that. Um, so is is there anything else?

Um, I mean, that that's really helpful in terms of, um

What you what you felt was, um, was really important. And, um,

is there anything else you would you would, um,

change about the event or add or anything else you'd like to say about it?

I think they could have been a bit more, um,

focus on talking to lived experience.

Um, patients that came.

Or people who survived their mental health. Uh, breakdown.

Um, there could have been more involvement from them instead of just hearing us. Um

What? People

were just saying there should be question time

or a bit more focus on them

because any policy changes advocating for this kind

of thing has to have a professional insight.

They need to listen to those people who have lived experiences. If you want more.

Uh, how how would I put it culturally appropriate practises Where you actually, um,

involved in the institutions to come together in sync and understand?

Ask the patients.

Like I said, um, in my, uh, speech, I said it's important to ask

the people who have lived to experience what they want

and they would be the driver.

They would be the force that would help deliver this service properly.

Um,

II, I won't

undermine what I say. Because,

really, if you're going to really understand someone,

then uh, you've got to ask them the questions.

You've got to let them say you've got to hear them.

Sure, sure. The follow up The follow up is really important.

Yeah, yeah, yeah,

OK. Shahina th Thank you.

Um is is is that, um thank you for that For those, um, insights.

I appreciate your time.

Thank you, I. I was

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Author

EmmaM

Post date

06/08/2024