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Report transcript in: Parent and Carer experiences of moving to Adult social care: Javed and Mohammed's experiences
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Parent and Carer experiences of moving to Adult social care: Javed and Mohammed's experiences
Please Report the Errrors?
Um,
today
regarding with the
Children's social care going to the adult social care.
I would like to talk about my brother.
He's our youngest brother,
he's Down syndrome.
Uh,
his name is Mohammad Akhtar.
And
I've from birth when he was born,
the gap between him and me is 19.5 years,
so he's 19.5 years he's younger than me,
and I've always been supporting him on the medical side.
So from
prectic to the adult doctors,
social care,
I've dealt with all his paperwork.
It got delayed for 2 years from children's
social care,
going to the adult social care.
It took 2 years
and we had,
we still had meetings on teams
uh and on Zoom,
but then at
some point when the lockdown got a bit eased,
we had a face to face meeting at the property.
So they came to the house,
met my brother,
and all his needs.
It took us from 2020 to
end of 2021
to get all the right things for him.
The information which was provided was really good.
I'm also good at research work,
so Google,
um,
just what I'll do is I'll go on to Google and Google a lot of stuff.
So if I do have any questions,
I can ask the
the adult social care,
which I did.
And
she looked at me and she says to me,
I was going to give you this information,
but you're already up to date with the information.
And which was more helpful because I
understood exactly what my brother's needs were
and what help he could get.
I personally think,
you know,
before
anyone meeting you,
they should provide that information beforehand
so that person is could be fully prepared or the carer could be fully prepared.
But giving that information afterwards,
when you're reading that information and you would say,
oh,
I missed this question,
I need to ask this,
and to rearrange that meeting again it's not easy.
It can take months.
The experience wasn't too good.
We ended up really
pushing them on several times
for arranging the initial meeting,
um,
because
they would keep saying that we shot staff
and then
on a couple of occasions they said we don't have the information
and I've said,
look,
I've sent it by email.
And I've got evidence that the email has been
opened because whenever someone receives an email from me
from my original email address,
it always tells me that the email has been opened at this time on this date.
So I had that evidence as well.
So providing that
evidence and resending the email again
with the appropriate evidence they required,
it took a bit of time and I think.
Lack of admin work
on their side was quite poor,
that they could improve on the admin work.
We started getting this the correct support
and my brother really got the help and support he needed.
And the appropriate
facilities were also fitted in the property as well for his needs.
He's doing well.
My brother,
I mean,
has been Down syndrome with severe learning difficulty.
I've sent him
to many different places,
and he will go for about 3 or 4 sessions and after that he'll say it's boring.
I don't want to go.
So he loves,
he loves his music,
so I've sent him to a Bungar College,
music college
where he was doing dancing,
music.
He really enjoyed it.
And then after about
6 sessions,
he says,
I can't do it anymore.
I do have networks,
but also there's been like nationally,
you know,
disabled people's days.
So I've been taking him to some activities
where we've been picking up some leaflets,
been talking to other people.
Who had Down syndrome,
some something like mencap has been really,
really helpful.
Um,
local authority has been really helpful as well.
Um,
he
lost
one thing he loves to do is he wants to be a police officer.
Because my son's a police officer
and he's always,
he says,
I want to be a police officer as well.
So I managed to get a police van
with a uniform and a hat
and let him explore
the police van and what the police do.
So now he's interested.
Now he wants to go to a police station,
so I'm going to speak to
one of the senior commanders in Leeds
to arrange a visit to one of the police stations in Leeds,
and whatever my son does.
Or whatever I do,
my brother wants to follow up my footsteps,
and he says,
I'm a policeman,
I'm going to be a police officer one day.
So just to get his wishes through,
I've managed to arrange for the uniform
and the policeman they got into the
the driver's seat.
They put the blues and twos on for him,
and he says,
I am the policeman now.
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